What is Neurofibromatosis
Learning difficulties can affect as many as 80% of children with Neurofibromatosis Type 1 (Nf1). Not all children are affected the same. In fact each child experiences their own set of difficulties ranging from very mild to severe.
These difficulties can be further compounded when a parent also has a learning difficulty due to Nf1. These parents will find it difficult to explain to teachers why their child is displaying “bad behaviours” and not keeping up with their peers.
Funny Lumps can help support parents facing this problem.
What We do at Funny Lumps
We provide a range of help sheets for parents, teachers and support staff, which can give them understanding of the Nf1 child and how to help them to achieve their full potential. All our help sheets are available for download on the Factsheets Page.
We can provide power point presentations to help the child’s peer group have a better understanding of why their classmate needs extra help and behaves in a certain way. Often once children realise there is a reason for particular behaviours they can hopefully accept them better.
Events & Workshops
Funny Lumps organises family events throughout the year, where the whole family can get together with others in the same situation who can understand and support.
May is Nf Awareness Month and whilst we try to spread awareness every day of every month we all work doubly hard in May and try to organise a way we can raise awareness together. Keep an eye on the website to find out about our activities.
Just being able to chat with others who understand can help the whole family deal with their situation. Many friendships have been formed at the Funny Lump’s events and no more so than at the Annual Family Workshop Weekend. This event takes place in Stirling in April and is our main event.
Cal’s Pals Kids Club
Our mascot Cal has his own club – Cal’s Pals. Cal is an active Participant in Funny lumps: he visits schools and helps to explain all about Neurofibromatisos, he joins in for the Funny Lumps organised Family events and is just an overall Bright presence here at Funny Lumps.
Kids can join the Cal’s Pals club to receive their own Cal’s Pal tee shirt and goodie bag by emailing firstname.lastname@example.org.
Buy a gift –
Support our children!
Meet the board of trustees
Chair and founder
Karen is the mother of two grown up sons, the eldest has Neurofibromatosis. Watching her son go through school, college and life in general led her to working over the last twenty years in the Nf world trying to make a difference.
Her hopes for the future are for every child with Nf to reach their full potential both educationally and socially and to be able traces the health care necessary for their lives to be as pain free as possible.
Janice comes from a three generation family with Neurofibromatosis. She has the condition herself as do her two daughters.
Her oldest daughter is 19 and works for Starbuck whilst saving to go travelling and is hoping to do some voluntary work abroad. Her younger daughter is 17 and hoping to pursue a career in child care supporting children with additional needs. Janice herself works for a bakery as an accounts clerk.
Child Protection officer
Being diagnosed with Neurofibromatosis himself, at age 10, he ist a passionate advocate for the charity and neurofibromatosis awareness.
He has over 15 years in management and retail experience, holding several positions in various companies during that time. Andy lives in North Ayrshire with his partner and son.
Gary is 55 and married with three sons. One of Gary’s sons has Neurofibromatosis and he felt that because of the support he received from Funny Lumps he wanted to give some time back.